Saturday, March 13, 2010

Fit and more

Well James had a febrile fit while I was home with him on Monday looking after him. I freaked and ran around with him sobbing "James, no, no, no" until I put him down and called 111 as per this post on another forum:

"Bloody hell, happened again this morning, only this time I actually saw my boy keel over unconscious with his eyes rolled back in his head and not breathing. Fuck its scary, I ran about with him in my arms like a rag doll basically gibbering and wailing until I got it together and called 111.
They sent a fire engine first as they were closest and an ambulance, even the firemen were a bit freaked I could tell to see this little guy lying there motionless and grey staring into the ether.

Anyway no harm done, and big props to our emergency services and hospital people they are frikkin awesome and very thorough!"

We spent the day in the hospital, they wanted to make sure it was nothing more serious.
In other events we got James' patient report from the CDT. What we expected but it's still hard to read the cold truth of his level of capability which is around 18 months.
We are still waiting on his Chromosome tests, both me and Michelle are very worried about the possibility of Fragile X. If he does have that there will be no hope of any level of decent intelligence which will be disappointing for two people who already feel like things are against us.
Prob be a few weeks before we find out.
What will be will be and I will always love and look after him whatever happens.

Tonight I made a big deal about the 'Baby' (James large doll) and brushed her teeth and read her a book, and put her to bed and kissed her and checked her nappies, all the things I do to James and he was highly amused! He was extremely tired, I put him down about 7:10 and he would have been asleep in 5 minutes.

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