Hello blog. Less use for you at the moment as not feeling so sad, angry, worried anymore.
M and I have started with the rethink autism website and have put some concerted effort in. Once a week one of their consultants Lin calls us and speaks with us for upwards of an hour giving us guidance and monitoring James progress.
We're getting into the swing of it and committing time every day to have a good go and it is paying off already. James has done some independent pointing, is making good eye contact when asked, and progressing towards some other things. Best of all he likes being in his room doing 'homework'! Who wouldn't with bits of Jelly snake for motivation!
Love interacting with him and his smiles :)
Really pleased. Really focusing everything we can on this little guy now, and using every bit of time with him to develop 'something' , 'anything' in some way.
Thursday, May 27, 2010
Tuesday, May 4, 2010
Couple of encouraging things. Firstly James is still echoing new words I say to him when I show him an object and have his attention. today it was 'handle' yesterday is was 'pliers' and 'lock' (I think).
Today he was playing at Penny's with a Duplo car and a block was stuck in the back, there was not enough for him to grip onto as it was mostly recessed and he wanted to take it off so after trying to remove it and not being successful he was sticking another brick on it, so that by pulling that brick it would take both off. He was definitely doing this on purpose and I thought now that's smart thinking :-)!!!!
It didn't work due to the lame Duplo grip they have so I offered help and he actually came around the table with it to me and I did it for him (it was hard!) twice.
Also his bike riding; he is entirely self taught and has learnt to balance, steer and now brake by dragging his feet (after experimenting with sticking them out facing forward which gets a bit wild).
I did give him loads of praise the other day while he was riding his bike; almost North American styles LOL; 'Yay, go James, (clapping and patting his head as he goes past)!
Also he is much more frequently recently taking me by the hand, I have been encouraging this by being responsive and saying 'show Daddy' and then going wherever. although I have to say 'no' recently to leaving a couple of houses (Mums and Penny's) that we have been at.
So here's lazy old me up after midnight blogging, filling out SCERTS sheets and about to go back on the rethink autism site to watch videos, take notes and print stuff out. Of course he's worth it!
Today he was playing at Penny's with a Duplo car and a block was stuck in the back, there was not enough for him to grip onto as it was mostly recessed and he wanted to take it off so after trying to remove it and not being successful he was sticking another brick on it, so that by pulling that brick it would take both off. He was definitely doing this on purpose and I thought now that's smart thinking :-)!!!!
It didn't work due to the lame Duplo grip they have so I offered help and he actually came around the table with it to me and I did it for him (it was hard!) twice.
Also his bike riding; he is entirely self taught and has learnt to balance, steer and now brake by dragging his feet (after experimenting with sticking them out facing forward which gets a bit wild).
I did give him loads of praise the other day while he was riding his bike; almost North American styles LOL; 'Yay, go James, (clapping and patting his head as he goes past)!
Also he is much more frequently recently taking me by the hand, I have been encouraging this by being responsive and saying 'show Daddy' and then going wherever. although I have to say 'no' recently to leaving a couple of houses (Mums and Penny's) that we have been at.
So here's lazy old me up after midnight blogging, filling out SCERTS sheets and about to go back on the rethink autism site to watch videos, take notes and print stuff out. Of course he's worth it!
We went on the course today. The start was awful, they showed a video clip of each child and me and Michelle watched in what I can only describe (for me) as horror as the other children played with trains and interacted with their parents, wrote letters, drew pictures and answered questions. I looked at Michelle and could see tears welling in her eyes as she watched with a fixed expression.
I had to explain to the group a little about James before his clip which was the last one and I felt all choked up. Then came James' clip, and the course supervisor introduced him by saying and here's James playing with Mr Potato Head in a way that made him sound like a baby, and then there was the clip of him sitting there in his Little School top, head down making hissing noises while he tried to put bits on Mr Potato head. In the video, while he was doing this Michelle was calling his name, but he was totally unresponsive.
It really felt like another further and final kick in the guts, to finally attend a course for Autistic kids and expect to meet other parents with children like yours but then find there's another level you can drop. :-(
I bet the other parents were thinking 'Jeeze at least my kids not like that'.
I didn't hear much of the next wee while as it slid by me a bit while I was thinking dark thoughts.
Later whenever the presenters would talk about how 'some of our children might never talk' they would look at us (or I felt so anyway).
On reflection the video clip was one of James at his Autistic best, and as it transpired while these other kids may have all these things they can do (uh like talk!) they in their own ways are just as disabled. It's the social reciprocity that is the underlying problem with all these kids. The child of the woman next to us builds things with wood and nails and can talk fluently, but has to stop ritualistically and ask questions about water all the time whenever they walk down the street past manholes and so-on, and never has cuddles with her and doesn't look her in the eye. This child also broke his arm at school and never said anything, the mother only noticed that something was wrong because his hand was hanging funny.
Tonight we went to Penny's for tea, while there James banged his ear and got very upset, Michelle was holding his arms and he was almost silently mouthing in anguish, I held out my arms and he fell into them and sobbed quietly but with very deep shuddering and clung onto me tightly. I talked to him and stroked his back and head. It is a strange mixed feeling, I felt close to tears myself, but I feel so glad when he clings onto us like this and feel so close to him when he wants to be comforted by his Daddy. I lifted him up after a little and took him close to Michelle and he leaned out to go to and cuddle her. It's fantastic that he loves us like this.
I had to explain to the group a little about James before his clip which was the last one and I felt all choked up. Then came James' clip, and the course supervisor introduced him by saying and here's James playing with Mr Potato Head in a way that made him sound like a baby, and then there was the clip of him sitting there in his Little School top, head down making hissing noises while he tried to put bits on Mr Potato head. In the video, while he was doing this Michelle was calling his name, but he was totally unresponsive.
It really felt like another further and final kick in the guts, to finally attend a course for Autistic kids and expect to meet other parents with children like yours but then find there's another level you can drop. :-(
I bet the other parents were thinking 'Jeeze at least my kids not like that'.
I didn't hear much of the next wee while as it slid by me a bit while I was thinking dark thoughts.
Later whenever the presenters would talk about how 'some of our children might never talk' they would look at us (or I felt so anyway).
On reflection the video clip was one of James at his Autistic best, and as it transpired while these other kids may have all these things they can do (uh like talk!) they in their own ways are just as disabled. It's the social reciprocity that is the underlying problem with all these kids. The child of the woman next to us builds things with wood and nails and can talk fluently, but has to stop ritualistically and ask questions about water all the time whenever they walk down the street past manholes and so-on, and never has cuddles with her and doesn't look her in the eye. This child also broke his arm at school and never said anything, the mother only noticed that something was wrong because his hand was hanging funny.
Tonight we went to Penny's for tea, while there James banged his ear and got very upset, Michelle was holding his arms and he was almost silently mouthing in anguish, I held out my arms and he fell into them and sobbed quietly but with very deep shuddering and clung onto me tightly. I talked to him and stroked his back and head. It is a strange mixed feeling, I felt close to tears myself, but I feel so glad when he clings onto us like this and feel so close to him when he wants to be comforted by his Daddy. I lifted him up after a little and took him close to Michelle and he leaned out to go to and cuddle her. It's fantastic that he loves us like this.
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